Sunday, September 5, 2010

Pulmozyme and P.B.


I have used Pulmozyme since Thursday evening, so far with no noticeable side-effects. I'm surprised, I thought at a minimum my throat would be irritated, but I am feeling pretty good. Sorry you are having cold symptoms. I hope it is not from the Pulmozyme and if it is, your body will over come it. Not that I want you to have a cold, but that would be a better scenario than medication side-effects.

I too feel so lucky that I have such great insurance. I am paying $30.00 for a 60-day supply. Are you using Pulmozyme once or twice a day? Right now I am using it twice, but I need to contact my doctor to make sure that is what she wants. At the office visit she said it would be just once a day. So glad the treatment only takes 5 minutes. It takes more time to clean the mouth piece than to administer the medication.

I still think it is funny we showed each other out P.B. (pot bellies!). Its funny because up until about 6 months ago, I had no idea that a P.B. is a CF trait. I cannot tell you how much grief this thing has caused me over the years. I have the hardest time finding clothes, especially dresses. I'd leave a dressing room in tears because everything I tried on would make me look so fat! It always puzzled me because I have a small frame and then this belly that just didn't fit with the rest of my figure. For example, I am 5'4" and I weigh about 123 pounds. But yet I wear size 9 pants (or 29" waist). Its crazy how big I have to buy to avoid the muffin top. (LOL) Being more educated now about this, I have a better time dealing with it. Plus, over the years, I have just learned what type of clothes to look for. Any ideas why CFers end up with these crazy bellies?


  1. Ugh. The belly. Hate it. Knowing others go through this doesn't change the fact that when I say I have to buy fat jeans, but I'm 5'3" and 120 pounds, I feel gross. (my ex - and he's an ex for a reason - called me an egg on stilts once. I don't think I will ever fully recover from that one.) What is wrong with us?! And how can I get rid of it?

  2. Egg on stilts? Justine, that is horrible! I don't think there is any get of rid of the belly. I have tired everything. Yep, still look 4 months pregnant.

  3. Lipo? I wish I could do that, I just don't think that would make a big difference. :( I wish my abs were strong enough to suck it in like I used to be able to do.